We chose to go with the three stage surgery. Dr. Hornberger explained what would be done with each surgery and we were confident that Jonathan would be just fine (at least Scott was, I was just VERY worried!)
We were told that Jonathan would be delivered at
Scott and I met with pediatricians, neonatologists and lots of other important people to ensure that Jonathan would be safe when he was born. We were told that we might not be able to see him right after his birth, because he might need to be ventilated in order to help him breathe.
After visiting the Special Pregnancy Clinic at